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LINKS

ME /CFS LINKS

Official CF-Alliance Website

 

 

Action For M.E 

CFS Research Foundation

25% ME Group

Invest In ME

Search ME

ME North East

Network ME London

Welsh Association of ME & CFS Support

Irish ME/CFS Support Group

Irish ME Trust

Falcony Academy Educational freedom for those with ME/CFS 

Fund for osteopathic research into ME

"I was on the brink of suicide" by Samantha Miller  (BBC News Article)

 

FMS LINKS

 

 

 

 

The FMS/ACM Controversy

Fibromyalgia Awareness

FibroTalk Support 

Pro Health Immune Support - Fibromyalgia & Chronic Fatigue Syndrome 

Portsmouth Va, Fibromyalgia/CFIDS Support Group

Fibrosite 

What is ME? What is CFS? Information for Clinicians & Lawyers

 

HMS LINKS

 

Hypermobiltiy & Fibromyalgia Support Site

Hypermobility Forum

HypermobilityUSA

Healing Tides Life Coaching Hypermobility Syndrome

Joint Hypermobility & Primary Fibromyalgia A clinical enigma

Joint Hypermobility In children (Article by prof. bird)

Joint Hypermobility Sydrome Case Study (News Article)

Double Trouble (News Article)

"I still dont think anyone believes me" (News Article)

Joint Hypermobility and genetic collagan disorders: are they related? (Article)

Associaton between Joint Hypermobility Syndrome & Panic Disorder 

Ehlers Danlos Support Group

 

OTHER RELATED LINKS

Diagnose Support

Experts Patients Programme

DLA & AA Self Assessment & Information Service

Online UK Database of GP's, Specialists & Consultants.

The Invisible Disabilities Advocacy

List of Local Support Groups in UK & Overseas

Mayo Clinic

NHS direct

 

FLYERS & POSTERS TO DOWNLOAD

Energising ME Research UK Poster Funding biomedical research into ME

HMS GP Flyer A short summary of HMS & Info on the HMSA

 

FREE PUBLICATIONS TO READ

Faces of CFS Case histories of chronic fatigue syndrome by David Bell

Evidence Based Guideline for the management of ME/CFS in children & young people

ME/CFS: Clinical working case definition, diagnostic & treatment protocals 

The complexities of Diagnosis  Complete chapter 3 of "the handbook of chronic fatigue syndrome"

Supporting People with severe ME  A review article that aim to raise nurses awareness of ME.

Guidance on the management of ME/CFS

Severely neglected M.E in the UK

M.E Diagnosis: Delay Harms Health A report from the ME Alliance.

New developements of the biology of ME/CFS

Master Symptom List for CFS FMS CMP & LYME DISEASE

Fibromyalgia Information Booklet

Fibromyalgia infomation booklet by the FMA

The Fibromyalgia (FMS) Patients Guide

What is Fibromyalgia? Easy to read series of publications for the public

Fibromyalgia & Pregnancy by Kathy Longley

Growth Hormone Deficiency and Fibromyalgia by Kathy Longley based on a talk by Dr Robert Bennett

Joint Hypermobility & Fibromyalgia by Kathy Longley

 

FREE PUBLICATIONS TO WATCH 

CFS/M.E Awareness Information Video by Sleepydust

Living With Fibromyalgia Video by Holly Fraiser from diagnose support 

Living with Severe ME by Linda Crowhurst (Windows Media Player DVD presentation)

Diastolic Cardiomyopathy and ME/CFS (a streaming video) A 3 hour talk by Dr Paul Cheney a physician & ME/CFS researcher

 

PUBLICATIONS TO PURCHASE

CFS/ME/PVFS by Dr Dan Rutherford

Living with ME: the chronic, post viral fatigue syndrome by Dr Charles Shepherd

 

Living With Fibromyalgia

 

The First Year: Fibromyalgia

 

The Fibromyalgia Relief Handbook

 

Hypermobility Syndrome Diagnosis & Management for Physiotherapists

 

The Arthritis Helpbook: A treated self management program for coping with arthritis and fibromyalgia

 

Therapeutic Exercise for spinal segmental stabilisation in low back pain

 

MY WEBRINGS

 

 

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